The Pain is Just Too Much…

For months now, every single thing I do on my feet; like walking or any form of bending, immediately increases my pain so much that I feel like I am being crushed to death from my waist down!  I have to get to a padded place to sit ASAP to stop the sharpness of it.  Now I find myself not wanting to get out of the chair at all.  I do everything I can from a padded chair on wheels, but now I can’t even seem to walk to the bathroom without suffering.  I so wish I could get a slim power chair that would fit inthe doorways inside my house, then I would not have to get on my feet or suffer through so damn much pain.  I have pain even sitting, but with medication I can deal with that pain usually.  

I had a bad headache for 2 days straight and today the headache is gone, but my head doesn’t feel right.  Much like it tends to feel the day after a migraine.  When I get migraines I always get a floater in my vision first, which I did not have happen.  It wasn’t a migraine, just a bad non-stop headache for 2 days…😪

I am so tired, exhausted even, of being in so much pain.  I want to enjoy the beautiful weather outside, yet I can’t sit out there for long.  Even on a pile of pillows!  I wish I had something I could lay on outside.  I am feeling very down & depressed, who wouldn’t in my shoes.  I don’t have anyone to comfort me or be a part of my life, so I sometimes feel lonely.  I have been feeling that a lot the last few days.  Yet, I can’t even think about ever dealing with another man after having 3 failed marriages and several men that are liars in my life.  I have been just me, by choice, for almost 3 years now.  Normally I am perfectly fine with that.  I guess I feel like it would be nice to just have a good friend.  Though, in the amount of pain I have now, I would be a very good friend to even have…😢

There seems to be no point at all to my life, other than constant pain and what feels like torture.  I literally have NO Life.  I HATE leaving my house, because of the pain and the panic & anxiety crap I deal with.  I would go to the neighbors occasionally if I had a power chair to get there in and to be able to sit there in.  Other than that, I have NO desire to ever leave my home.  I literally only leave my home for appointments and once a month I go to the store for groceries.  I have become a hermit I guess…🏡

Keeping my mind busy is Important, that keeps my mind off the pain.  I am so uncomfortable and have so much pain, that there isn’t much I can do to keep my mind busy anymore.  I always would clean to keep my mind busy, now it has become too painful for me even in the rolling padded chair…😖💺

I don’t know what else to do.  I am finally scheduled for the blocks across my low back, but it isn’t until November 29th!!!  If those blocks help at all, then I will be scheduled for ablation; which is basically radio frequency burning of the nerves.  The nerves will grow back, but I could get 3 months to 3 years of relief in that area.  Unfortunately, I have several bad areas.  The left side of my neck is constantly in pain and has been for 7 years.  Sometimes the pain is really bad!  Both my feet are numb, yet feel like they are being crushed!  My entire low back, both butt cheeks, both hips and both legs.  The left side is even more painful than the right side.  For 7 years I have progressively gotten worse and the painful areas have spread out farther.  Needless to say, I am MISERABLE!!!  I need my living hell to end!  😫😭😰

I have tried everything I possibly can to help me.  Why do I have to be poor!  If I had money then I could buy a power chair.  Even taking a shower is enormously painful!  I force myself through that pain once a week.  I can’t even sit in the bathtub to soak, too painful there too.  I give up!  I pray I die in my sleep and soon…..🛌 ☠ ⏳… No one should ever have to suffer in so much pain!  

Now they are taking pain medication away from people who need it just to function.  Chronic pain patients!  I fear what hell I will be forced to live when that happens to me.  I know how horrid the pain is without medication.  Why doesn’t my body just give up and die already?  So many people that have lost their pain medication have killed themselves.  They couldn’t take the pain anymore.  Pain medication is there for this reason, so no one has to suffer.  Yet, you have to jump through hoops just to finally get any pain medication and you are never given enough to really cover your pain.  I can’t help but wonder if the governments plan is for chronic pain patients to end their lives, why else would they just take it away suddenly!   I am tired of the fear I have for if and when that happens to me.  With all of the CDC’s BS going on over Opioids, chronic Pain Patients are being screwed over and even treated like addicts.  News flag, chronic pain patients don’t abuse their meds and they are regularly drug tested among many other things that provethey are compliant. Drug addicts don’t start out with a prescription from a doctor.  The CDC is grouping Heroin in with pain medications as Opioids.  Many addicts have died from street drugs like heroin and illicit fentanyl, it is NOT the compliant chronic pain patients!  Yet we are the ones who are suffering………….😡😤😖

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Going Down…

I seem to be continuing to go down hill.  The intractable chronic pain just keeps getting worse.  I am barely able to do the basic clean up of the kitchen and what I do get done, is ALWAYS from my padded chair on wheels.  I am tired of constantly suffering.  Feeling like I am being tortured day after day.  I do not have a support system at all.  I need help, but there is none.  The pain just makes the depression worse…

I had my 3 month visit with my pain management nurse practitioner.  I asked about radio frequency ablation and they do that there.  First, you have to have a block done to the area to see if it will actually help, before they do the ablation.  Now I wait a couple of weeks for my insurance to authorize the block, then I will be scheduled, most likely in September sometime.  If the block helps the area, then they will schedule the radio frequency ablation.  That is where they use radio frequency to basically kill the nerve, but the nerve will regrow. One can expect 3 months up to 3 years of relief.  I have so many areas that need to be addressed, but first we are doing the two main nerves that run on each side of the lower back.  Since they never listened to me for over five years about my feet going numb and then the pain there too, even if they were able to uncompress those nerves. It has been so long, that I wouldn’t regain the feeling in my feet.  I just want the damn crushing pain to stop!  I get to upset at the fact they never listen to me.  It didn’t show in the MRI’s, I had to have painful nerve conduction testing done and yet they still have done nothing with that.  I said I need to have an MRI with contrast, because they are missing way too much.  I will push for that in December I guess…

I honestly can not keep doing this!  7 years of this painful hell!  The pain gets worse and spreads every year.  I cannot be on my feet walking, standing or bending without horrid crushing pain from hell.  I have NO life!  Now I can’t even do the basic chores that need to be done.  I find myself begging God to take me in my sleep and end my living hell.  I wish I could sleep, but I am lucky to even do that at night.  Sleep is my only escape and the only place I have a life, in my dreams.  I have struggled with depression my entire life and I have battled Panic disorder for over 22 years now.  Taking a shower is extremely painful.  I need a small shower chair that will fit in there, but I have no money for anything I need.  I force myself to shower once a week, that is all I can take.  I am hungry and of course there is not one thing healthy to eat here.  Every month the same food costs even more…

There is NO joy in my life, just pain and suffering.  I just want to be done with this life.  All of the things I have lived through, for what!  My birthday was last Tuesday, now I am 48 years old.  I feel 90.   Even sitting on my thick pillow is painful anymore.  Why…. Why must of be left to suffer!  If only I had the courage just to end it all., but I don’t.  How anyone can say that someone is a coward or took the easy way out, when they take their own life, really hasn’t got a clue………….

WHY???

1.  I want to know why the doctors refuse to give me the medication that works the best for my panic disorder here, yet others seem to get it prescribed and turn around and sell it!  It pisses me off!  Alprozolam/Xanax is the absolute best medication for my panic disorder.  I was on that for over 10 years and that medication stops the attacks while also allowing me to feel completely NORMAL.  I Had tried many different medication, most that did not work at all.  I was originally put on Xanax down here back in 1995. When I moved back here, I was told they couldn’t give me that anymore.  They tried Klonopin, but that made me feel drunk and I don’t drink.  They put me on Ativan/Lorazapam.  This medication helps, but takes an hour to work at all and causes me to feel even more tired.  Xanax was made for someone just like me.  I was told that Xanax has a high abuse level and that is why they wouldn’t give it to me.  Let me tell you, I have NEVER abused medication, I have NEVER sold my medication and I have NEVER even shared my medication!!!  So, I am not allowed to be on the one medication that helps the most and allows me to feel normal.  WTF…

2.  Why is it that doctors never seem to give enough medication to actually cover the massive pain you live with every day of your life?  For the last 7 years I have been living with major intractable pain, that gets worse every damn year.  It took 6 years to just get on a medication that actually does help some.  After trying several different non-opioid medications that caused me to be severely depressed or suicidal or swell so bad I couldn’t walk at all.  Now the CDC is going after opioid medication like a steak dangling before a starved dog.  They are putting doctors in jail whose only crime was prescribing life saving opioids to patients in horrible pain.  The patients that are able to get up and go to work only because they have opioid medication to help them accomplish it.   The CDC wants ALL opioid medication gone by 2019.  That’s right, even the ones used in the hospital after surgery!  They are saying that we have an opioid crisis and people are dying.  The problem is they are grouping all the drug addicts that die from heroin and street drugs in the same group as chronic pain patients, because heroin is an opioid.  So what this does is take away the life saving medication from real pain patients.  Now these patients can no longer get up and go to work. Several have already taken their own lives, because the pain (untreated) is more than they can endure.  Many states here in the USA have adopted the CDC guidelines as rules and they have taken all the opioids away from the chronic pain patients there, or at the very least they have cut the medication way down.  This terrifies me, because if or when this happens to me, I will be one of the ones that is forced to just end my life.  Yes, you are going to see a massive increase in suicides over the next two years.  Just do a search online for “opioid crisis”. You will see the many things that the CDC has already started.  

3.  Why am I constantly being punished for being poor?  I worked for years and made very good money.  It is NOT my fault that I became disabled or that my ex-husband chose to walk out on me while I was recovering from  two major surgeries that saved my life.  Yet, every time I turn around, I am being punished for being poor!   If I had money, I would be able to pay the $100 for the Neurobehavioral Exam I need in order to obtain the Spinal Cord Stimulator, which may very well help with my constant intractable pain.  If I had money, I could get much better treatment and the best medications.  If I had money, I could afford to eat healthy, which would most likely help me on many levels.  But I don’t have money.  I struggle every month just to survive.  Let me break it down for you in my monthly bills and income: Mortgage-$482, Electric (budget billing) $158, Gas (budget billing) $42, Water-$90, RX copays-$30 = $802.00. My income per month is $813.00. That leaves me with $11.00 a month to buy toilet paper, personal hygiene items, etc.  I receive $200 a month in Foodstamps to replenish food items I need (like sugar,flour & condiments) and buy food to feed me for the entire month.  This is very difficult to do, so in order to have food to eat every day, I have to pick the cheapest options.  These are also the NOT good for you options.  My vehicle quit running two years ago and I don’t have money to have it fixed, plus I don’t have funds to pay for insurance or gas anyway.  My gas range (stove/oven) quit working over a year ago, again I do not have funds to have it fixed or buy a new one.  The dryer is on its way out as well.  Yes, I have tried everywhere here for any kind of help and there is none!  

Ok, that’s enough, I am feeling extremely depressed now………….

It Never Ends…

Now my secondary insurance is saying I do not have full coverage.  So, I still cannot be seen by a psychiatrist because I am poor.  Which is it then?  First they said they don’t cover adults for mental health and now it is that I do not have full coverage.   I pray my general doctor will do the letter that my pain doctor needs and continue to prescribe my panic medication…

On top of that, the CDC has issued new rules on Opioid medication.  They do not want anyone to have opioid medication, even the chronic pain community.  Many have already had their meds reduced or completely taken away, leaving them in horrendous pain.  The CDC says this is to combat the overdose deaths, but those are actually happening with addicts and heroin.  They categorize heroin in with all prescribed opioids.  A hospital in Boston has already stopped giving opioid medication after surgery!  WTF!  Can you imagine not getting any form of help with the excruciating pain?  People with chronic pain conditions are being left, dropped by doctors.  Unable to work anymore due to this and many have killed themselves.  With NO hope of obtaining any form of relief from never ending pain, that seems to be the only option left.  There will be a huge increase in suicides as this progresses on.  Just do a search for “opioid epidemic or CDC opioids” you will see for yourself what I am referring to.  Doctors never give enough medication to really cover the pain as it is…

This year has been extremely difficult for me.  My pain is worse and spread to other areas.  My panic disorder has been very troublesome.  I am having to use a cane most of the time.  If I never had to stand, walk or bend; I would have less pain.  But, my wheelchair doesn’t fit in the doorways inside my house.  I need a power chair that will fit.  Hell, I need a lot of things, but no money to obtain them.  I need one of those small circle shower chairs and something to holed my shower head lower.  Showering is so painful, that I have not done it in 9 days now.  Yeah I know-Gross, but I do give myself a sponge bath daily.  Though, my hair need to be cleaned…

For me, even sitting has become painful.  I don’t know what to do anymore.  I already have to bring a thick foam cushion to sit on everywhere I go.  I feel like my entire back side of the pelvic bone plus both hips are being crushed inward.  The pain engulfs my butt cheeks as well, then it goes down my left leg (feels like a brain freeze after eating something frozen fast) and both my feet constantly feel like they are being crushed – but the outside area is completely numb.  The left side of my neck has never stopped hurting since I was beat.  I now have a lot of weakness in my left leg too.  I am unable to do much of anything and what I do get done is always from a padded chair on wheels.  I had to choose between toilet paper or toothpaste this month.  I only have a small amount of money to buy things I need every month and always having to choose between things I NEED!!!

My parents came up here from Florida and took me on their trip to Northern ILLINOIS to see my brother & sister and their families.  I am so grateful I got to see them all, since I know it will be the last time I get too.  I thought laying down in the back seat would help keep my pain lower, but it did not.  Most of the trip I was in tremendous pain.  The trip is normally 15-16 hours if you drive straight there, but my parents needed to stop driving by 4pm every day, so we stopped over at hotels twice to get there.  On the way back home, we stopped over night once.  I did get to see my grandson for an hour, which was very nice.  We left here on the 18th and returned here on the 26th.  

The neighbor gave us a gas oven, since mine hasn’t worked in two years, but it is missing the power cord and my father said it looked bad at the connection.  So, we continue on without an oven.  Story of my life, disappointed after disappointment………….

This Life I Have Lived…

I don’t know if it is the full moon or what, but I have been flooded with memories of my life.  All sad, nothing good.  After all, all good things are short lived.  I really should of ended my life when I was a teenager like I wanted too…

I was raped twice, at age 15 and again at age 21.  My father groped me when I was 19.  My childhood involved mental and physical abuse, only to be followed by three husbands that did roughly the same things.  I have never been able to handle crowds or being around a lot of people.  I asked for mental help in my teen years, only to be told that we don’t do that sort of thing.  It is no wonder I am the mess in which I am, just looking at all I have lived through…

Why do I continue to think I might miss something if I am no longer here?  I have NO evidence of that.  Life has proven to me that there will always be pain and suffering.  Come on, I don’t even have a vehicle or a working oven.  Yes, I just thought about Thanskgiving and how I have no way to cook a turkey or any of the other things I always make…

I had a doctors appointment yesterday at 9:20am.  Yesterday was also the death anniversary of my son, 14 years now.  I arrived at the appointment at 9:15am.  After I sat in a busy waiting room (I don’t do well with that) for 25 minutes, I began to have a panic attack and I had to get out of there as fast as my pain riddled body would allow.  Yes, I left, I had too.  Even after returning to my home and taking anxiety medication, I continued for hours to have panic, anxiety and just craziness.  I couldn’t even call the doctor to explain and rescheduled until 3pm.  See, I HAVE to see my doctor, because I HAVE to see him in order to get him to write a letter stating why I need to be on anxiety meds in order for my pain doctor to continue to prescribe me pain meds.  WTF!  The pain doctor read some study stating that people on pain meds and benzodiazepines have a greater risk of death.  Just more BS for me to try to deal with.  I looked into these studies and guess what?  It was due to people being new to the meds, which I am not, and people that also drank alcohol, which I do not!  If I don’t have both of those meds, I am 10 times more likely to end my suffering.  Maybe I should write that up in a letter to the doctor.  

The BS doesn’t stop there.  My general doctor has been prescribeng my mental health meds ever since  my psychiatrist dropped me saying my insurance wasn’t paying.  It took me a year to get in with that damn psychiatrist.  I finally found a psychiatrist under my insurance and made an appointment.  They said I had to see the counselor in order to see the psychiatrist, which was fine with me.  I went for my initial intake appointment.  She wanted to see me every week, but I don’t have a damn vehicle and I have to get a ride from my daughter in law, so I set up to return the following week, but said I would have to do every two weeks after that.  Anyway, they called me the day before my return appointment and told me that my secondary insurance did not have mental health coverage activated on it and I would have to pay $40 everytime I came in. WTF…. I am disabled due to mental health related issues, how the hell do I not have that coverage!  I get the extra help from the state because my income is so freaking low!  I absolutely hate this state, it sucks beyond sucking.  So, I have to call said insurance to try to fix this problem, but I haven’t been able to do it, because my panic won’t let it happen right now.  I did email them and they sent me the contact info of whom I need to converse with in regards to this issue.  Needless to say, I cannot return to see them since I don’t have money to pay them.  Right back to square one again.  

Honestly, it just amazes me that I even get out of bed every day.  I wish I could just sleep all of the time, but my pain won’t allow that!  Oh, let’s not forget that I have to go to court on Monday.  A creditor that is owed a chunk of money is going after me for it.  In my divorce my ex was made responsible for this debt, but you have to be taken to court in order for them to even go after who is responsible.  Great fun, not!  I will have to get up hours before I have to leave.  Get just enough anxiety medication in me to be able to go there.  Wear clothes required by court that will make me entirely too hot and sick.  Survive through the appointment and get my butt back to my safe place, home!  I hate leaving my house!  Have I mentioned how hot it is here?  It feels like hell, literally.  From the 90’s through the 100’s with high humidity…

I did make Frosted Fudge Brownies last night.  I wanted them so I made it happen, then I ate too much and got ill.  Now I still have the mess in the kitchen to clean up.  My life is on a constant repeat.  After I can finally get my body moving, I clean the kitchen from a chair, then I wipe down all the surfaces in the house and I vacuum while in a chair.  This takes hours and hours.  By the time that is done, I hurt so bad I have to sit in a chair with a pile of pillows and I watch tv to try to occupy my mind until I can go to bed.  I wake in the early morning and have to get out of bed, due to the pain, then I repeat it all over again and again. Some life huh…

Look how fat I am getting…

Also, a pic of the brownies…

Chronic Pain…

Since 2010, I have been in constant pain.  Not just one area, but multiple areas.  Sometimes the pain is tolerable, but still always there.  Most of the time the pain is bad and occasionally it is so bad I can’t stand it anymore.  Any form of bending over jacks my pain up enormously!  So what, do I just sit back or lay down my entire life?  I can’t do that…

I spend 4 hours most days trying to get the basic chores done.  I do one little thing, then I have to sit on pillows for a while, then I do another little thing and so on.  In this window of time, I try my hardest to just clean up my little kitchen, wipe down surfaces and vacuum the small area that I sit in.  Four hours!  I have discovered that I feel better mentally when things are in there place and all is clean.  So day after day, on a repeat cycle, I push myself through pain and do a little thing at a time, just to have a better mental being and to get some movemnet daily.  Then I sit back in a big chair filled with pillows until I am able to go to sleep.  Mind you, the first four hours I am awake, I am unable to do anything.  So 4 hours of trying to get where I can move around, then 4 hours of tidying up with tons of breaks and around 7 hours of waiting to sleep.  This is my life…

The days I have appointments, I am unable to do anything other than try to not have a full blown panic attack, go to the appointment and get back home.  My Panic and Anxiety disorders greatly increase my pain, because my body tenses up and that causes it all to go crazy.  I have suffered with panic and anxiety for 22 years now.  Yes, this is my life…

I have no desire to be with another, yet occasionally I feel pretty lonely.  I have gained weight, stopped wearing makeup and let my hair grow out just so I am not bothered by men.  I have been through hell and back too many times to count.  I am basically just waiting to die.  No socialization, I don’t even want to be around people, but I do miss having a close friend here.  Day after day, all the same…

What really pisses me off is how those of us who are poor cannot get adequate relief.  We are ignored simply because we cannot pay.  There are so many things that could help me, yet I have no way to get those things.  Just trying to survive on a very small fixed income with a mortgage.  I no longer even have a vehicle.  I get $200 a month to buy food with.  The cheapest things are not good for you.  Just being able to afford to eat healthy would help.  So here I remain, on the repeat cycle and isolated from everything…

Been Sick for over Two Weeks Now…

What seems like clock work, every other year I get sick with the flu or some other virus and then I end up with either bronchitis or pneumonia.  On December 17th, I woke with a scratchy feeling in my throat and chest.  That night the chills set in and a fever of 102.8!  For 3 nights this repeated, but the fever was a little lower each night.  A dry non-productive cough annoyed me night and day!  Not able to sleep and barely could eat.  After 13 days and feeling like I could not breathe, I finally got in to see the doctor.  Pneumonia!  Had a breathing treatment, received shots of steroids & antibiotics in my hip.  Sent home with prescriptions for antibiotics, cough syrup and a powder inhaler.  It took a full three days (today) before I finally started to feel any better at all.  I was able to sleep most of the nig last night, but I still have the dry cough.  I can also eat now.  I have a pain in my right side that wraps to my back, right in the lower rib cage area.  This started a week ago and is still constantly killing me!  Like endless torture…

My immune system has been messed up ever since I had Mono when I was 14 years old.  Or maybe it’s always been messed up.  As a kid I got sick all the time.  Why can’t I find a doctor that will actual do something?  I have had Mono twice, your not supposed to be able to get it again.  I had fifth disease that stayed with me for months, when it should not have!  If I could afford to eat healthy, I would do so much better.  The answer is simple, go live with my parents.  Except, it’s not that simple.  I have to find homes for my animals that I saved over the years.  I did not know at the time, that my husband would cheat and leave, which put me in this position of lack of funds to survive!  

This is the year for change!  I am not going to continue to sit here alone suffering.  I have given my adult kids more than enough time to stand up and help out and they won’t.  I Must put my health first!  I will do what I can over the next few months and then I need to move on…

I often wish I would just die in my sleep, so I no longer have to suffer………….