It Never Ends…

Now my secondary insurance is saying I do not have full coverage.  So, I still cannot be seen by a psychiatrist because I am poor.  Which is it then?  First they said they don’t cover adults for mental health and now it is that I do not have full coverage.   I pray my general doctor will do the letter that my pain doctor needs and continue to prescribe my panic medication…

On top of that, the CDC has issued new rules on Opioid medication.  They do not want anyone to have opioid medication, even the chronic pain community.  Many have already had their meds reduced or completely taken away, leaving them in horrendous pain.  The CDC says this is to combat the overdose deaths, but those are actually happening with addicts and heroin.  They categorize heroin in with all prescribed opioids.  A hospital in Boston has already stopped giving opioid medication after surgery!  WTF!  Can you imagine not getting any form of help with the excruciating pain?  People with chronic pain conditions are being left, dropped by doctors.  Unable to work anymore due to this and many have killed themselves.  With NO hope of obtaining any form of relief from never ending pain, that seems to be the only option left.  There will be a huge increase in suicides as this progresses on.  Just do a search for “opioid epidemic or CDC opioids” you will see for yourself what I am referring to.  Doctors never give enough medication to really cover the pain as it is…

This year has been extremely difficult for me.  My pain is worse and spread to other areas.  My panic disorder has been very troublesome.  I am having to use a cane most of the time.  If I never had to stand, walk or bend; I would have less pain.  But, my wheelchair doesn’t fit in the doorways inside my house.  I need a power chair that will fit.  Hell, I need a lot of things, but no money to obtain them.  I need one of those small circle shower chairs and something to holed my shower head lower.  Showering is so painful, that I have not done it in 9 days now.  Yeah I know-Gross, but I do give myself a sponge bath daily.  Though, my hair need to be cleaned…

For me, even sitting has become painful.  I don’t know what to do anymore.  I already have to bring a thick foam cushion to sit on everywhere I go.  I feel like my entire back side of the pelvic bone plus both hips are being crushed inward.  The pain engulfs my butt cheeks as well, then it goes down my left leg (feels like a brain freeze after eating something frozen fast) and both my feet constantly feel like they are being crushed – but the outside area is completely numb.  The left side of my neck has never stopped hurting since I was beat.  I now have a lot of weakness in my left leg too.  I am unable to do much of anything and what I do get done is always from a padded chair on wheels.  I had to choose between toilet paper or toothpaste this month.  I only have a small amount of money to buy things I need every month and always having to choose between things I NEED!!!

My parents came up here from Florida and took me on their trip to Northern ILLINOIS to see my brother & sister and their families.  I am so grateful I got to see them all, since I know it will be the last time I get too.  I thought laying down in the back seat would help keep my pain lower, but it did not.  Most of the trip I was in tremendous pain.  The trip is normally 15-16 hours if you drive straight there, but my parents needed to stop driving by 4pm every day, so we stopped over at hotels twice to get there.  On the way back home, we stopped over night once.  I did get to see my grandson for an hour, which was very nice.  We left here on the 18th and returned here on the 26th.  

The neighbor gave us a gas oven, since mine hasn’t worked in two years, but it is missing the power cord and my father said it looked bad at the connection.  So, we continue on without an oven.  Story of my life, disappointed after disappointment………….

Panic & Anxiety, Stressing Out…

I’m have to go to court tomorrow, in my divorce my ex was made responsible for past debt, but the debt was in my name, so I am being brought to court by them trying to collect.  I am hoping all I have to do is show the judge the divorce papers and he can sign off so they can go after my ex.  But……. Having panic, Anxiety and Agoraphobia I always freak out before ANY appointment and it always starts the day prior.  So here I am, panicking about having to leave my house, having to wear the only thing I have allowed in court (which will make me hot and I get ill when I am hot) and having to be around way too many people!  To top it all off… I have to do the once a month grocery shopping on Tuesday and I have a doctors appointment on Thursday…

I just can’t seem to get myself to calm down or relax at all.  My medication for panic doesn’t seem to be doing a damn thing.  My entire body is wrenched up tight.  I can’t see right, my heart is racing and my limbs feel tingly.  I barely get any sleep the night before appointments as well.  Heck, I only slept 5 hours last night.  I want to go to bed right now, even though I won’t sleep, just to get some sort of relaxation.  Why do I have to be like this???

I am also stressing about not having an oven that works.  For some reason I am thinking about Thanksgiving, guess I won’t be able to cook this year.  Stressing about the dryer, which is on its last leg.  Everything comes up in my mind when my panic gets going.  I want to stop thinking, just be blank…

Writing tends to help.  I have already wrote 6 pages in my journal, so I am trying to write it out here too.  Back before the pain, I would pace and that would help, but now I can’t do that.  I guess I will try to sit in the bath, then just go lay in bed and listen to a guided meditation, until the pain makes me get back up again………….

The Present Moment…

They saying goes, that if we want to be happy and feel good, we need to remain inthe present moment.  Just this very moment, nothing else.  No Past or Future, no tomorrow or next hour, etc.  That is the secret in DBT, dialectical behavior therapy, which I did for 3 years straight.  The reason we don’t remember things, is because we do not pay attention to each present moment and what we are doing at that time.  It requires you to completely and only focus on right now…

Say you are sitting in a chair, you would describe to yourself exactly what you are doing right then.  “I am sitting in my chair, my legs are bent, I can hear birds chirping, I hear a car driving by, and so on!  The actual present moment.  The same applies to every thing we do. Washing dishes, focus on only that!  The problem is, I keep forgetting to be in the present moment…

We can only do the best we can.  I seem to have to constantly remind myself to just be in today, this hour, this minute.  Do not worry about anything else.  What will be, will be.  Go with the flow and flow with what may come.  It is a daily struggle for me.  Why does it have to be this difficult?  

For me, I have found my mental well being is effected by clutter and messiness.  So, every single day that my body allows me to, I do basic chores.  I feel like I can breathe better too.  I have to complete what I want done in a 2-3 hour window, after that my body won’t allow anything else to be done.  I have found I struggle every single day, in the evening, with depression.  When I have to sit with all the pillows and I try to focus on a TV show or movie.  If only my body would let me do more, to occupy my mind.  I feel down and ever so alone in the evening…

I do the best when I can keep my mind busy.  Living with Panic & Anxiety Disorders, I have become a hermit.  In order to keep my levels down, I avoid people and places when ever possible.  It took me years to figure out many of my triggers and years to stop paying attention to time.  Now I am stuck home even if I wanted to go somewhere, my vehicle died back in 2015, I have no way to fix it.  I also, am unable to eat healthy (which can help), since I have to eat an entire month and get what the household needs on $200!  Oh crap, this is what happens, the stress…forgetting the present moment…focusing on the chaos of my so called life…

It would be nice to have a friend just to even talk to once a week.  Someone to do something with even.  My so called boyfriend, that lives in WI, barely even talks to me anymore.  He lost his job and is dealing with depression, which I understand.  I don’t understand barely talking to me when he is the one that came after me, insisted we were the same and made promises he is not keeping.  Why do men do this crap?  Can anyone be a man of their word?  I am open and talk about everything, he insisted he was too, then why not talk to me about things?  So, he got my hopes up and then ripped the rug out from under me…………

Beautiful Weather, Jacked-Up Pain…

It has been 12 days now since the injections I had in the bursa of my butt cheek areas.  The left side has stayed with increased pain and now I have pain all through the hip and top of the leg!  This is also on the right side, but the left is much worse…

I am tired of feeling like I am being ignored and pushed along at every doctor visit!  They did nothing when I told them my feet were going numb years ago and now both are completely numb, plus I have pain the feels like they are being crushed and when I walk it feels like walked on very sharp glass.  I have to wear shoes always and they have to be tennis shoes that are way bigger than my feet, because I can’t stand anything touching them!  I am slowly getting to the point of having to be back in a wheel chair!  Like is said, every single year it just progresses and gets worse!  What do I have to do?  I see the Pain Doctor, or should I say the damn PA tomorrow!  (I hate that). The pain medication does help take the very hard edge off of the pain, but they never give enough to actually give you a life…  While drug addicts seem to have no problem getting the drugs!  This really pisses me off!  While I lived in IL, I had to go through a ton of meds to find what worked for my Panic, Anxiety and depression.  I moved back to GA and they wouldn’t give me those meds!  Yet, drug addicts get them… WTF! I am so damn tired of it…

Hurricane Mathew came by, I am inland, but we expected very high winds and a lot of rain. We did get a decent amount of rain, but it was mostly a light rain fall for a solid 12 hours and some decent wind gusts, but no where near as bad as we expected.  Which is good, I worried about the dead tree in the back yard coming down.  When your disabled and struggling to make it, you do not have the funds to take care of anything!  

Tell me, how does one eat an entire month on $200, which also has to buy the condements and sugar, flour, etc.?  I am basically living on those $1.00 Party Pizzas, which does a number on my intestinal track!  I can’t even count how many mornings now that I have crappy myself!  IBS, which did not bother me for years, is back in full swing, all because I cannot buy healthy food.  I never eat breakfast or lunch, I eat crackers and fruit cups when the hunger pains get to me or my blood glucose drops too much.  I am Hypoglycemic, but not diabetic.  Hypoglycemia runs in my family.  Sometimes the hypoglycemia causes me a lot of problems and other times I can go months or even years where it does nothing…

Exercise….. Living with constant chronic pain, it is difficult to get any exercise.  This is why I force myself to clean up the kitchen, wipe all the tables down and use the light vacuum through the house every day.  That is the only exercise I get and it is painful, but I do it so my body moves everyday…

…The vacuum I had, a Dyson, was too heavy for me to use and I had NO way to buy another vacuum.  I wrote to three of the top vacuum places and explained my situation to them.  Hoover sent me a very lightweight vacuum that is steerable and super easy to use.  I recommend it for anyone suffering from a chronic pain condition.  Hoover Air Steerable, UH72400!  It has truly been a godsend for me!  It has a button to turn on or off the beater bar.  My house is just under 1400 square feet and the main areas are all hard floors with throw rugs, while the bedrooms are carpeted.  I have several animals, all of which I got before I knew I would be in this position of being alone and no money!  I am allergic to Pet Dander, so vacuuming daily is importent for my health. The Hoover Air Steerable picks up all the hair and even cat food and litter, while it transitions from hard floor to carpet all on its own!  I have always been a person that would NEVER ask for help, but now I am in the position, that the only way I will survive, is through help.  I don’t understand why the state of GA does nothing to help!  I literally have nothing left after paying the mortgage and utilities.  Yet, I can’t get help with the utilities!  How do I buy needed items?  Like toilet paper, DEODERANT, soap, shampoo and conditioner, etc.  I do everything I can to earn Amazon credits through Bing and Crowdtap, but that gets me around $10 a month and you have to have a $49 Oder for free shipping unless your Prime, which I can’t afford!  I wrote Amazon about that and they just gave me one $20credit…WTF!  Where is the help for people who are Disabled and Alone with no help from a spouse or anyone else?  I have tried everywhere and I do NOT have a vehicle!  My son’s girlfriend was getting me to appointments and now her vehicle has been broke down for months!  My insurance will give me 12 rides to appointments a year, which is no where near enough!  What about getting to the store and pharmacy?  I have rotten wood on my house, can’t pay to fix it!  The list is endless…

So there enlies the massive STRESS!  Which is also why I have been having Panic Attacks Daily!  Ugh…  In IL I was on Xanex, it works fast so when an attack started I could take one and in 15 minutes it would help me.  In GA, they refused to give me that and put me on Ativan, which takes an hour to work, so I have to take it three times a day to keep it in my system and I am still having attacks!  Yet, I constantly hear about the damn drug addicts getting Xanex.  I am ANGRY and just plain sick and tired of the crap………….

    After My Vacation…

The three weeks I spent in the perfect Peace at my parents house was very nice.  I did not once have a horrible splitting headache and my pain levels where much better for the most part.  I know, for a fact, that stress contributes a lot towards the level of my pain.  I felt care free and I had zero stress while I was there, except for when my son informed me of the things my daughter was doing.  I also, meditated every single day.  I did not worry about how I was going to obtain things I needed or if my kids were going to take care of something.  I also went to the gym with my mom once a week while I was there.  I saw how much going to the gym helped me physically and mentally.  Even though I could not do a whole lot, it still benefited me in many ways.

I was home for three days before the stress and worry had its grips on me again.  Last night I had one of the worst headaches I have ever had in my life.  It ruined my time out with a great person.  I have NO life here.  My life is this…. Get up, wait to feel good enough to function, do my chores, watch my grandson and go to bed.  Just trying to fit in dating seems near impossible, because I have to watch my grandson while my daughter works and she has to use my vehicle.  She thinks the entire world revolves around her.  I told her I do not have a life and she said, “Yes you do!”  I raised my kids, this is supposed to be my time, to actually have a life I want, not dng for everyone else.  I woke in a great mood the last two days and my daughter single handedly ruined them.  When she wakes up, she starts yelling and cussing.  Sounds horrible.  The stress instantly rips through my entire being.  She says crap that is just not right!  I also have not had the time to meditate.  I have to change this!

I joined the gym near here.  I MUST make sure I get to the gym and meditate.  The gym offers massage and tanning so I can sneak in meditation there too.  The only draw back is that my ex goes to that gym, so I am hoping I go when he doesn’t.  I don’t care if he is there, but he has to have a fit about stupid things.  My plan is to go three times a week.  Work out, do the massage and then lay in the tanning bed.  I want my entire body tan and it is just not safe to lay out here naked…lol!

I have met a couple of Guys and went on a few dates.  One of them I do like and will see more of.  It is funny how when Spring hits there are a lot of guys interested.  I just want a decent boyfriend to do things with and know I have another half.  I do not want him to live with me!  I really wish my friend from high school lived here, he is perfect for me!  I guess I need to just focus on me… Meaning, I need to go to the gym and meditate and not worry about having a boyfriend or anything else.  I really don’t have the time for it.

I need to build my own life.  I also need to delegate chores to the others in this house.  It is time for spring cleaning.  I should not be the only one doing everything!  I know when I was away from here, I felt at peace.  Now I spend too much time wanting to leave and find my peace again………….  

      

Day 7 away from the Stress…

I have fully enjoyed the complete peace and quiet here.  No reason to tense up and be on edge.  My son, however, informed me yesterday that my daughter has been making some very bad choices.  I am not sure why, when I am away from home, she does this.  So, I was pretty tense and stressed out yesterday when I found out she had grabbed my grandson and choked him.  Luckily, my son intervened and stopped it.  I am most likely going to have to have her removed again.  If she would just stop doing what ever drug she can get her hands on, I am sure she would improve greatly!  Enough of that, I am away from home so I don’t have to deal with those things…

I spent an hour doing a deep meditation yesterday.  I always want to stay in there, my entire body so relaxed and it is very peaceful.  I need to get back on track of doing a deep meditation every day.  You connect with your inner self that way.  It helps in many ways, even with your physical health.

My biggest problem when it comes to men is, expectations.  I seem to always expect them to be or do things as I would, which leaves me very disappointed.  I have been focusing on this part of me and reminding myself that no one is just like me and I cannot make someone do things just because I think they should.  Let me tell you, this is a very hard thing to over come.  Though, it is the one thing that always puts me in a sad place, so loose the expectations and I will not become greatly disappointed.

I have also found it very rare to find someone I am even slightly attracted to.  I have found a couple and they have all turned out to be liars…lol!  Recently, I found another one and I asked all the important questions, in which he responded very well too.  So, I chose to give this a go.  For me, I will only be with one man at a time.  I put all I have into it and focus only on him.  We have a lot in common, so what is the draw back?  He is a truck driver, so I will see him once a month maybe.  Now, this can be a good thing if I can stop with the expectations.  I keep busy and I have said before how great it would be to just see my guy on the weekends or every other weekend.  With him I will only see him a couple of days a month or so.  He keeps saying how it really is hard on relationships and how he has not ever found someone who can handle it.  It is all in how you perceive things and react to them.  Keeping it all positive will be key and enjoying the time we do have together.  We text every day, so that is good.  I am even willing to go on a run with him in order to spend more time together. So, I will see where this goes.  He has one son and he is 16 years old.  I want to find the one who will be my best friend and who I can enjoy my senior years with!

Back to working on myself…  

1.  Notice and catch all negative thoughts.  Do NOt say them out loud and change them to a positive thought.

2.  Say Positive Affirmations every day!

3.  Take the time to meditate, even if it is just a 20 minute deep breathing session!

4.  Do something every day to pamper yourself!

5.  Put forth effort to look at people, be in the moment and smile!



So Frustrated…

I have been leaking around the catheter line since the day after I was in the ER and found out I had an infection, even though I was on antibiotics! It seems to be getting worse! I had already resorted to wear a generic form of depends underwear, which suck by the way, because underwear and a pad were not catching all of it and it was running down my leg! Last night I decided I would try wrapping the top of the line where it goes into me with gauze and then secured the exposed part with tape and I put on underwear with a pad. After two hours, my pad was soaked, the gauze was soaked and so was my underwear. I don’t know if it caused more of a leak or I have been leaking that much in the depends underwear, since they hold a lot more than a period pad. So much for thinking I might be able to wear underwear instead of the bulky ass diaper underwear! So frustrating!

Basically, there is nothing I can do about it and I have to have this in until the 10th of September. 30 days total! From what I can tell I will need to wear diapers for a few days while I try to learn how to pee again then. I so want to be done with all of this.

I have been paranoid about getting another infection, so three times a day I wipe it all down with alcohol to sterilize it! My last antibiotic is on Tuesday, I am returning home Tuesday and calling that morning to the doctors office to request they call I more antibiotics to get me until the catheter is removed! I have been on one form or another of antibiotics since July 17th. Yesterday morning and when I just got up there was a line of white urine in the tube. Like watered down milk. I have been passing a lot of white stuff too. I am forcing myself to drink as much water as possible. Did I mention how much I hate water!

Saturday was the first day I did not feel really sick. I actually felt like I had energy too. I even only took one nap. So, I figured the infection finally got beat down enough not to make me sick. Yet, the leaking has increased! I did not leak at all until after going to the ER and finding out I had an infection? Probably just coincidence. I had been thinking the leaking was caused by the infection and that maybe it would go away when the infection went away. I have read though, that when you have a catheter in for over two weeks, it is common for it to leak. The doctor said I would have it one to two weeks. I feel like he lied about every single thing to me. He insists I need it in this long and the benefits out weight the negatives. He doesn’t have to have it in him and hurting him 24/7. Many people say they don’t feel it, but mine hurts at all times, sometimes so bad I want to scream. It’s always a burning and irritated feeling, then it will jab stabbing pains up into me. I have had it in for 20 days and I have 10 more to go! I am having some test done on Friday that checks to make sure your bladder and all is working right and there is no reflux.

I only have two days left here at my parents and then a seven hour car ride back to my home. I so pray my family will be adults and get along and just be a family. I will miss the pure peace and quiet I get here. My parents waiting on me. They show concern for me and talk to me every day. My mom cooks and makes sure I eat right.

I slept about a hour and a half before I just woke and discovered everything wet. So, now I will be up for a bit. At least it is early enough that I should be able to get more sleep. One good thing about being back home is I have a fridge in my bedroom so I can get an ice cold drink when I get up at night. Here, I take a tea to bed and then drink that when I am up in the night and it’s usually pretty warm by then. I love lipton citrus green tea. My parents golf on the weekends. Yesterday they left here at 8:15am and were back at 11:45am. Today they leave at 9am and should be back around noon. Usually when I am here my parents take me out to eat a lot, but since I am attached to a big green bag that holds the big catheter bag, since I can’t wear the leg bag because it causes more leaking and won’t stay up on my skinny legs, I am not really wanting to go out anywhere. On the trip here I had to stop every two hours and get out of the car to move around and carry my bag. People would stare at me. The one bad habit I have is smoking, so I did go into a gas station to get some cigarettes with my bag and had urine run down my leg while I was paying. I have no dignity left.

I really pray I am able to urinate on my own when they take this thing out. I had one in for a couple of hours and I could pee but it burned like hell and took a lot of focus to get the urine out. I was determined though! It seems I get a night of decent sleep the a few where I am up a lot. Send some prayers this way for me, please………….