WHY???

1.  I want to know why the doctors refuse to give me the medication that works the best for my panic disorder here, yet others seem to get it prescribed and turn around and sell it!  It pisses me off!  Alprozolam/Xanax is the absolute best medication for my panic disorder.  I was on that for over 10 years and that medication stops the attacks while also allowing me to feel completely NORMAL.  I Had tried many different medication, most that did not work at all.  I was originally put on Xanax down here back in 1995. When I moved back here, I was told they couldn’t give me that anymore.  They tried Klonopin, but that made me feel drunk and I don’t drink.  They put me on Ativan/Lorazapam.  This medication helps, but takes an hour to work at all and causes me to feel even more tired.  Xanax was made for someone just like me.  I was told that Xanax has a high abuse level and that is why they wouldn’t give it to me.  Let me tell you, I have NEVER abused medication, I have NEVER sold my medication and I have NEVER even shared my medication!!!  So, I am not allowed to be on the one medication that helps the most and allows me to feel normal.  WTF…

2.  Why is it that doctors never seem to give enough medication to actually cover the massive pain you live with every day of your life?  For the last 7 years I have been living with major intractable pain, that gets worse every damn year.  It took 6 years to just get on a medication that actually does help some.  After trying several different non-opioid medications that caused me to be severely depressed or suicidal or swell so bad I couldn’t walk at all.  Now the CDC is going after opioid medication like a steak dangling before a starved dog.  They are putting doctors in jail whose only crime was prescribing life saving opioids to patients in horrible pain.  The patients that are able to get up and go to work only because they have opioid medication to help them accomplish it.   The CDC wants ALL opioid medication gone by 2019.  That’s right, even the ones used in the hospital after surgery!  They are saying that we have an opioid crisis and people are dying.  The problem is they are grouping all the drug addicts that die from heroin and street drugs in the same group as chronic pain patients, because heroin is an opioid.  So what this does is take away the life saving medication from real pain patients.  Now these patients can no longer get up and go to work. Several have already taken their own lives, because the pain (untreated) is more than they can endure.  Many states here in the USA have adopted the CDC guidelines as rules and they have taken all the opioids away from the chronic pain patients there, or at the very least they have cut the medication way down.  This terrifies me, because if or when this happens to me, I will be one of the ones that is forced to just end my life.  Yes, you are going to see a massive increase in suicides over the next two years.  Just do a search online for “opioid crisis”. You will see the many things that the CDC has already started.  

3.  Why am I constantly being punished for being poor?  I worked for years and made very good money.  It is NOT my fault that I became disabled or that my ex-husband chose to walk out on me while I was recovering from  two major surgeries that saved my life.  Yet, every time I turn around, I am being punished for being poor!   If I had money, I would be able to pay the $100 for the Neurobehavioral Exam I need in order to obtain the Spinal Cord Stimulator, which may very well help with my constant intractable pain.  If I had money, I could get much better treatment and the best medications.  If I had money, I could afford to eat healthy, which would most likely help me on many levels.  But I don’t have money.  I struggle every month just to survive.  Let me break it down for you in my monthly bills and income: Mortgage-$482, Electric (budget billing) $158, Gas (budget billing) $42, Water-$90, RX copays-$30 = $802.00. My income per month is $813.00. That leaves me with $11.00 a month to buy toilet paper, personal hygiene items, etc.  I receive $200 a month in Foodstamps to replenish food items I need (like sugar,flour & condiments) and buy food to feed me for the entire month.  This is very difficult to do, so in order to have food to eat every day, I have to pick the cheapest options.  These are also the NOT good for you options.  My vehicle quit running two years ago and I don’t have money to have it fixed, plus I don’t have funds to pay for insurance or gas anyway.  My gas range (stove/oven) quit working over a year ago, again I do not have funds to have it fixed or buy a new one.  The dryer is on its way out as well.  Yes, I have tried everywhere here for any kind of help and there is none!  

Ok, that’s enough, I am feeling extremely depressed now………….

It Never Ends…

Now my secondary insurance is saying I do not have full coverage.  So, I still cannot be seen by a psychiatrist because I am poor.  Which is it then?  First they said they don’t cover adults for mental health and now it is that I do not have full coverage.   I pray my general doctor will do the letter that my pain doctor needs and continue to prescribe my panic medication…

On top of that, the CDC has issued new rules on Opioid medication.  They do not want anyone to have opioid medication, even the chronic pain community.  Many have already had their meds reduced or completely taken away, leaving them in horrendous pain.  The CDC says this is to combat the overdose deaths, but those are actually happening with addicts and heroin.  They categorize heroin in with all prescribed opioids.  A hospital in Boston has already stopped giving opioid medication after surgery!  WTF!  Can you imagine not getting any form of help with the excruciating pain?  People with chronic pain conditions are being left, dropped by doctors.  Unable to work anymore due to this and many have killed themselves.  With NO hope of obtaining any form of relief from never ending pain, that seems to be the only option left.  There will be a huge increase in suicides as this progresses on.  Just do a search for “opioid epidemic or CDC opioids” you will see for yourself what I am referring to.  Doctors never give enough medication to really cover the pain as it is…

This year has been extremely difficult for me.  My pain is worse and spread to other areas.  My panic disorder has been very troublesome.  I am having to use a cane most of the time.  If I never had to stand, walk or bend; I would have less pain.  But, my wheelchair doesn’t fit in the doorways inside my house.  I need a power chair that will fit.  Hell, I need a lot of things, but no money to obtain them.  I need one of those small circle shower chairs and something to holed my shower head lower.  Showering is so painful, that I have not done it in 9 days now.  Yeah I know-Gross, but I do give myself a sponge bath daily.  Though, my hair need to be cleaned…

For me, even sitting has become painful.  I don’t know what to do anymore.  I already have to bring a thick foam cushion to sit on everywhere I go.  I feel like my entire back side of the pelvic bone plus both hips are being crushed inward.  The pain engulfs my butt cheeks as well, then it goes down my left leg (feels like a brain freeze after eating something frozen fast) and both my feet constantly feel like they are being crushed – but the outside area is completely numb.  The left side of my neck has never stopped hurting since I was beat.  I now have a lot of weakness in my left leg too.  I am unable to do much of anything and what I do get done is always from a padded chair on wheels.  I had to choose between toilet paper or toothpaste this month.  I only have a small amount of money to buy things I need every month and always having to choose between things I NEED!!!

My parents came up here from Florida and took me on their trip to Northern ILLINOIS to see my brother & sister and their families.  I am so grateful I got to see them all, since I know it will be the last time I get too.  I thought laying down in the back seat would help keep my pain lower, but it did not.  Most of the trip I was in tremendous pain.  The trip is normally 15-16 hours if you drive straight there, but my parents needed to stop driving by 4pm every day, so we stopped over at hotels twice to get there.  On the way back home, we stopped over night once.  I did get to see my grandson for an hour, which was very nice.  We left here on the 18th and returned here on the 26th.  

The neighbor gave us a gas oven, since mine hasn’t worked in two years, but it is missing the power cord and my father said it looked bad at the connection.  So, we continue on without an oven.  Story of my life, disappointed after disappointment………….

The never ending Shit-Storm called My Life…

I am disabled with mental health issues plus more, but when I tried to obtain mental health services my secondary insurance (Medicaid) would not pay.  It took 2 months to get any response on the matter from the Dept. of Human Services here in GA.  They said they do not cover mental health services for adults.  WHAT?  Why was I able to obtain them for several years prior?  How is that even possible?

My pain doctor is requiring a letter stating why I need my panic meds in order to continue to get pain meds, my general doctor refused to do this letter and took my meds from me.  After two weeks of hell, my general doctor agreed to help me with the meds, but not the letter, until I can be seen by a psychiatrist.  I have an appointment on the 27th with a psychiatrist. I have no way to pay $40 every time I go to the psychiatrist, but I also won’t survive without both my panic meds and my pain meds.  I honestly don’t know how I have not ended my life yet.  Oh wait, yes I do, I am too much of a pussy to kill myself!

I told the Medicaid office that the federal government passed a law last year stating that Mental Health Services have to be covered.  There are limits, but I can work with 20 visits a year.  I supposed it will be another 2 months before I hear back on that.  You can NEVER get through on the phone.  

I haven’t had a running vehicle in 2 years, have not had a working oven in over a year and a half, my coffee maker died yesterday, my dryer is on its last leg and I barely survive every month.  I literally have nothing left from the $813 a month I get, after I pay the mortgage & house bills.  I am supposed to be seeing a psychiatrist and a counselor…

I GIVE UP!!! I can’t take this hell storm anymore.  I have tried everything, everywhere and this state sucks.  There is nothing out there to help me………….

That’s It, I Am Done…

My pain doctor said I had to get a letter from my other doctor that prescribes my anxiety medication in order to continue to get my pain meds.  The letter needs to state why I need to take the medication and that there are no other alternatives.  I am disabled with Panic Disorder and Agoraphobia, that alone should state why I need the medication.  For 22 years I have fought the panic with agoraphobia cycles.  Today, my other doctor told me that he won’t do the letter, because it will make him liable if I die.  After I explained repeatedly and cried telling him I have already been through every medication out there over the last two decades and I am on the only one that even slightly helps, he still refused.  Now my anxiety medication has been taken away and I am given antihistamines.  I already know this road.  First I will withdrawal which is horrible and then the antihistamines will make me tired and increase my major depression.  So by doing this, the doctor has now greatly increased the chance that I will end my own life…

I cannot deal with anymore crap.  I am already struggling to survive and barely able to leave my home for appointments.  My sister tells me I eat too much bad food and I will be just fine if I eat healthy.  Hey guess what, I have $200 a month to get what the household needs and feed myself.  I can’t stand long to really cook much either.  All she did was make me feel even crappier and more depressed.  I don’t know why I keep reaching out to my siblings, it is never supportive or loving.  I have three siblings still alive.  Not one of them can even comprehend what I deal with, since they have not ever gone through any of my demons.  They have never had panic or agoraphobia or depression or chronic pain, etc.  I read that people can survive even cancer when they have a good support system.  Guess what….. I don’t have a support system at all…

I am exhausted, warn out, too damn tired!  I can’t even see right from all the stress, panic, anxiety (yes, panic and anxiety are two completely different things) and crying today.  I have fought hard and long to survive, now it is time for me to rest!  I so long for eternal peace.  I mentally and physically cannot do another thing.  I feel drunk, yet I don’t drink.  That is what all of this has done to me just today.  I give up!  I shall sleep while I can, because sleep will be fleeting without my medication………….

This Life I Have Lived…

I don’t know if it is the full moon or what, but I have been flooded with memories of my life.  All sad, nothing good.  After all, all good things are short lived.  I really should of ended my life when I was a teenager like I wanted too…

I was raped twice, at age 15 and again at age 21.  My father groped me when I was 19.  My childhood involved mental and physical abuse, only to be followed by three husbands that did roughly the same things.  I have never been able to handle crowds or being around a lot of people.  I asked for mental help in my teen years, only to be told that we don’t do that sort of thing.  It is no wonder I am the mess in which I am, just looking at all I have lived through…

Why do I continue to think I might miss something if I am no longer here?  I have NO evidence of that.  Life has proven to me that there will always be pain and suffering.  Come on, I don’t even have a vehicle or a working oven.  Yes, I just thought about Thanskgiving and how I have no way to cook a turkey or any of the other things I always make…

I had a doctors appointment yesterday at 9:20am.  Yesterday was also the death anniversary of my son, 14 years now.  I arrived at the appointment at 9:15am.  After I sat in a busy waiting room (I don’t do well with that) for 25 minutes, I began to have a panic attack and I had to get out of there as fast as my pain riddled body would allow.  Yes, I left, I had too.  Even after returning to my home and taking anxiety medication, I continued for hours to have panic, anxiety and just craziness.  I couldn’t even call the doctor to explain and rescheduled until 3pm.  See, I HAVE to see my doctor, because I HAVE to see him in order to get him to write a letter stating why I need to be on anxiety meds in order for my pain doctor to continue to prescribe me pain meds.  WTF!  The pain doctor read some study stating that people on pain meds and benzodiazepines have a greater risk of death.  Just more BS for me to try to deal with.  I looked into these studies and guess what?  It was due to people being new to the meds, which I am not, and people that also drank alcohol, which I do not!  If I don’t have both of those meds, I am 10 times more likely to end my suffering.  Maybe I should write that up in a letter to the doctor.  

The BS doesn’t stop there.  My general doctor has been prescribeng my mental health meds ever since  my psychiatrist dropped me saying my insurance wasn’t paying.  It took me a year to get in with that damn psychiatrist.  I finally found a psychiatrist under my insurance and made an appointment.  They said I had to see the counselor in order to see the psychiatrist, which was fine with me.  I went for my initial intake appointment.  She wanted to see me every week, but I don’t have a damn vehicle and I have to get a ride from my daughter in law, so I set up to return the following week, but said I would have to do every two weeks after that.  Anyway, they called me the day before my return appointment and told me that my secondary insurance did not have mental health coverage activated on it and I would have to pay $40 everytime I came in. WTF…. I am disabled due to mental health related issues, how the hell do I not have that coverage!  I get the extra help from the state because my income is so freaking low!  I absolutely hate this state, it sucks beyond sucking.  So, I have to call said insurance to try to fix this problem, but I haven’t been able to do it, because my panic won’t let it happen right now.  I did email them and they sent me the contact info of whom I need to converse with in regards to this issue.  Needless to say, I cannot return to see them since I don’t have money to pay them.  Right back to square one again.  

Honestly, it just amazes me that I even get out of bed every day.  I wish I could just sleep all of the time, but my pain won’t allow that!  Oh, let’s not forget that I have to go to court on Monday.  A creditor that is owed a chunk of money is going after me for it.  In my divorce my ex was made responsible for this debt, but you have to be taken to court in order for them to even go after who is responsible.  Great fun, not!  I will have to get up hours before I have to leave.  Get just enough anxiety medication in me to be able to go there.  Wear clothes required by court that will make me entirely too hot and sick.  Survive through the appointment and get my butt back to my safe place, home!  I hate leaving my house!  Have I mentioned how hot it is here?  It feels like hell, literally.  From the 90’s through the 100’s with high humidity…

I did make Frosted Fudge Brownies last night.  I wanted them so I made it happen, then I ate too much and got ill.  Now I still have the mess in the kitchen to clean up.  My life is on a constant repeat.  After I can finally get my body moving, I clean the kitchen from a chair, then I wipe down all the surfaces in the house and I vacuum while in a chair.  This takes hours and hours.  By the time that is done, I hurt so bad I have to sit in a chair with a pile of pillows and I watch tv to try to occupy my mind until I can go to bed.  I wake in the early morning and have to get out of bed, due to the pain, then I repeat it all over again and again. Some life huh…

Look how fat I am getting…

Also, a pic of the brownies…

Major Venting….

I must have a sign on me that says… “If your a liar, talk to me”. I didn’t want a relationship or any man.  He came out of no where and wooed me, like no other.  He made promises I never once even asked for.  Then I find out he is a chronic liar and has done this before to another.  I deal with enough crap in my own life, why the heck did he have to pick me…

Of course, I do not want to be with anyone that is a liar, but it still hurts like hell.  I have never met a man that didn’t lie to me or that was even a man of his word.  I told him up front, right from the start, everything I deal with and how I wont be with a liar, cheater , etc.   I thought that would make sure I wasn’t hurt again.  I am so hurt and so angry that he did this to me.  What the hell?  

I am going to get fat so men just stay away from me period.  I am NEVER going to be in another relationship the rest of my suffering life!  It is hard enough to deal with the pain I live in every day, I can’t deal with this emotional hell on top of it.  It has been 5 days now, why can’t I get over it already?  To top it off, he won’t admit to the lies I have proof of.  Typical, if you don’t admit to it, it never happened.  I have been shit on by every single man in my entire life…  I struggle to survive every day.  From the pain, depression, no money, no vehicle and lack of any kind of healthy food available.  

My daughter got out of jail last week.  She is still doing good at staying away from the drugs.  I want to help her succeed, but my son won’t let me.  I am controlled in my own home.  I can’t pay the utilities and he said if I let my daughter stay here even one night they would leave.  Screw it, I am done with everything.  Leave then, I don’t care anymore…

The Present Moment…

They saying goes, that if we want to be happy and feel good, we need to remain inthe present moment.  Just this very moment, nothing else.  No Past or Future, no tomorrow or next hour, etc.  That is the secret in DBT, dialectical behavior therapy, which I did for 3 years straight.  The reason we don’t remember things, is because we do not pay attention to each present moment and what we are doing at that time.  It requires you to completely and only focus on right now…

Say you are sitting in a chair, you would describe to yourself exactly what you are doing right then.  “I am sitting in my chair, my legs are bent, I can hear birds chirping, I hear a car driving by, and so on!  The actual present moment.  The same applies to every thing we do. Washing dishes, focus on only that!  The problem is, I keep forgetting to be in the present moment…

We can only do the best we can.  I seem to have to constantly remind myself to just be in today, this hour, this minute.  Do not worry about anything else.  What will be, will be.  Go with the flow and flow with what may come.  It is a daily struggle for me.  Why does it have to be this difficult?  

For me, I have found my mental well being is effected by clutter and messiness.  So, every single day that my body allows me to, I do basic chores.  I feel like I can breathe better too.  I have to complete what I want done in a 2-3 hour window, after that my body won’t allow anything else to be done.  I have found I struggle every single day, in the evening, with depression.  When I have to sit with all the pillows and I try to focus on a TV show or movie.  If only my body would let me do more, to occupy my mind.  I feel down and ever so alone in the evening…

I do the best when I can keep my mind busy.  Living with Panic & Anxiety Disorders, I have become a hermit.  In order to keep my levels down, I avoid people and places when ever possible.  It took me years to figure out many of my triggers and years to stop paying attention to time.  Now I am stuck home even if I wanted to go somewhere, my vehicle died back in 2015, I have no way to fix it.  I also, am unable to eat healthy (which can help), since I have to eat an entire month and get what the household needs on $200!  Oh crap, this is what happens, the stress…forgetting the present moment…focusing on the chaos of my so called life…

It would be nice to have a friend just to even talk to once a week.  Someone to do something with even.  My so called boyfriend, that lives in WI, barely even talks to me anymore.  He lost his job and is dealing with depression, which I understand.  I don’t understand barely talking to me when he is the one that came after me, insisted we were the same and made promises he is not keeping.  Why do men do this crap?  Can anyone be a man of their word?  I am open and talk about everything, he insisted he was too, then why not talk to me about things?  So, he got my hopes up and then ripped the rug out from under me…………