Chronic Pain…

Since 2010, I have been in constant pain.  Not just one area, but multiple areas.  Sometimes the pain is tolerable, but still always there.  Most of the time the pain is bad and occasionally it is so bad I can’t stand it anymore.  Any form of bending over jacks my pain up enormously!  So what, do I just sit back or lay down my entire life?  I can’t do that…

I spend 4 hours most days trying to get the basic chores done.  I do one little thing, then I have to sit on pillows for a while, then I do another little thing and so on.  In this window of time, I try my hardest to just clean up my little kitchen, wipe down surfaces and vacuum the small area that I sit in.  Four hours!  I have discovered that I feel better mentally when things are in there place and all is clean.  So day after day, on a repeat cycle, I push myself through pain and do a little thing at a time, just to have a better mental being and to get some movemnet daily.  Then I sit back in a big chair filled with pillows until I am able to go to sleep.  Mind you, the first four hours I am awake, I am unable to do anything.  So 4 hours of trying to get where I can move around, then 4 hours of tidying up with tons of breaks and around 7 hours of waiting to sleep.  This is my life…

The days I have appointments, I am unable to do anything other than try to not have a full blown panic attack, go to the appointment and get back home.  My Panic and Anxiety disorders greatly increase my pain, because my body tenses up and that causes it all to go crazy.  I have suffered with panic and anxiety for 22 years now.  Yes, this is my life…

I have no desire to be with another, yet occasionally I feel pretty lonely.  I have gained weight, stopped wearing makeup and let my hair grow out just so I am not bothered by men.  I have been through hell and back too many times to count.  I am basically just waiting to die.  No socialization, I don’t even want to be around people, but I do miss having a close friend here.  Day after day, all the same…

What really pisses me off is how those of us who are poor cannot get adequate relief.  We are ignored simply because we cannot pay.  There are so many things that could help me, yet I have no way to get those things.  Just trying to survive on a very small fixed income with a mortgage.  I no longer even have a vehicle.  I get $200 a month to buy food with.  The cheapest things are not good for you.  Just being able to afford to eat healthy would help.  So here I remain, on the repeat cycle and isolated from everything…

The Present Moment…

They saying goes, that if we want to be happy and feel good, we need to remain inthe present moment.  Just this very moment, nothing else.  No Past or Future, no tomorrow or next hour, etc.  That is the secret in DBT, dialectical behavior therapy, which I did for 3 years straight.  The reason we don’t remember things, is because we do not pay attention to each present moment and what we are doing at that time.  It requires you to completely and only focus on right now…

Say you are sitting in a chair, you would describe to yourself exactly what you are doing right then.  “I am sitting in my chair, my legs are bent, I can hear birds chirping, I hear a car driving by, and so on!  The actual present moment.  The same applies to every thing we do. Washing dishes, focus on only that!  The problem is, I keep forgetting to be in the present moment…

We can only do the best we can.  I seem to have to constantly remind myself to just be in today, this hour, this minute.  Do not worry about anything else.  What will be, will be.  Go with the flow and flow with what may come.  It is a daily struggle for me.  Why does it have to be this difficult?  

For me, I have found my mental well being is effected by clutter and messiness.  So, every single day that my body allows me to, I do basic chores.  I feel like I can breathe better too.  I have to complete what I want done in a 2-3 hour window, after that my body won’t allow anything else to be done.  I have found I struggle every single day, in the evening, with depression.  When I have to sit with all the pillows and I try to focus on a TV show or movie.  If only my body would let me do more, to occupy my mind.  I feel down and ever so alone in the evening…

I do the best when I can keep my mind busy.  Living with Panic & Anxiety Disorders, I have become a hermit.  In order to keep my levels down, I avoid people and places when ever possible.  It took me years to figure out many of my triggers and years to stop paying attention to time.  Now I am stuck home even if I wanted to go somewhere, my vehicle died back in 2015, I have no way to fix it.  I also, am unable to eat healthy (which can help), since I have to eat an entire month and get what the household needs on $200!  Oh crap, this is what happens, the stress…forgetting the present moment…focusing on the chaos of my so called life…

It would be nice to have a friend just to even talk to once a week.  Someone to do something with even.  My so called boyfriend, that lives in WI, barely even talks to me anymore.  He lost his job and is dealing with depression, which I understand.  I don’t understand barely talking to me when he is the one that came after me, insisted we were the same and made promises he is not keeping.  Why do men do this crap?  Can anyone be a man of their word?  I am open and talk about everything, he insisted he was too, then why not talk to me about things?  So, he got my hopes up and then ripped the rug out from under me…………

…EXPECTATIONS…

I have trouble not having expectations of others and that always leaves me full of disappointment.  I was raised to act right, because that’s what was expected of me.  There for, I was raised to have expectations…

I have tried so hard to just let go of those expectations, but they are so deep inside of me, that they are automatic.  We can only depend on ourselves and thinking someone else will do what we would do, is great expectations of that person, which leaves us totally disappointed.  We only ever really have ourselves and we can only ever really rely on ourselves…

The Expectations of Others, Has No Place in Happiness!  Time and time again, I have fully believed what someone else has said to me or promised me, only to be greatly disappointed when they do not hold true to their promises.  Why is it so hard to NOT have Expectations? How can one really stop having expectations, when they were told their entire life to have them?  Act right, because the world expects you too!  Why couldn’t I have been raised and taught to only rely on myself?  That would of been a huge help in life…

We create our own reality, by the thoughts we have and the things we voice.  I firmly believe this to be true.  I repeat every day over and over again, “Peace, Love, Happiness and Joy”. When one is happy, everything else is easier to handle.  I have seen this to be true myself.  Even my chronic pain is easier to handle when I am Happy!  We think others will make us happy, when in reality, only WE can bring happiness into our lives…

Everything in life is a choice.  Yes, choices of others can effect us, but in our own lives we make choices constantly.  When to get out of bed, what to wear, when to eat, etc.  of course, things can happen that we did not choose, like a child dying or cancer.  There enlies the profound words of, “Everything Happens for a reason!”  This, I also believe, to be very true.  Sometimes we never know the reason and other times we do.  The reason could have been for another person or something greater than we can know in this life.  This is where your own spiritual beliefs come into play.  I believe we are our souls, not these bodies.  That we are just renting them for the experiences here and we go on after these bodies die.  So, what you believe can help you are hinder you…

We can only truly control ourselves!  No one else!  We can control if we choose to react in a positive way or a negative way to things.  We control our own choices.  We can NEVER control another, just ourselves.  We should not even try to control anyone else, this also leads to disappointment.  Because thinking you can control someone or change them, is an expectation!  All we can do is continue on in the very moment we are in and know that this is our own life.  Try your best to choose Happiness and always come from a place of Love…

I would really like to know your opinions of what I have written here.  Please feel free to comment them to me………….

Beautiful Weather, Jacked-Up Pain…

It has been 12 days now since the injections I had in the bursa of my butt cheek areas.  The left side has stayed with increased pain and now I have pain all through the hip and top of the leg!  This is also on the right side, but the left is much worse…

I am tired of feeling like I am being ignored and pushed along at every doctor visit!  They did nothing when I told them my feet were going numb years ago and now both are completely numb, plus I have pain the feels like they are being crushed and when I walk it feels like walked on very sharp glass.  I have to wear shoes always and they have to be tennis shoes that are way bigger than my feet, because I can’t stand anything touching them!  I am slowly getting to the point of having to be back in a wheel chair!  Like is said, every single year it just progresses and gets worse!  What do I have to do?  I see the Pain Doctor, or should I say the damn PA tomorrow!  (I hate that). The pain medication does help take the very hard edge off of the pain, but they never give enough to actually give you a life…  While drug addicts seem to have no problem getting the drugs!  This really pisses me off!  While I lived in IL, I had to go through a ton of meds to find what worked for my Panic, Anxiety and depression.  I moved back to GA and they wouldn’t give me those meds!  Yet, drug addicts get them… WTF! I am so damn tired of it…

Hurricane Mathew came by, I am inland, but we expected very high winds and a lot of rain. We did get a decent amount of rain, but it was mostly a light rain fall for a solid 12 hours and some decent wind gusts, but no where near as bad as we expected.  Which is good, I worried about the dead tree in the back yard coming down.  When your disabled and struggling to make it, you do not have the funds to take care of anything!  

Tell me, how does one eat an entire month on $200, which also has to buy the condements and sugar, flour, etc.?  I am basically living on those $1.00 Party Pizzas, which does a number on my intestinal track!  I can’t even count how many mornings now that I have crappy myself!  IBS, which did not bother me for years, is back in full swing, all because I cannot buy healthy food.  I never eat breakfast or lunch, I eat crackers and fruit cups when the hunger pains get to me or my blood glucose drops too much.  I am Hypoglycemic, but not diabetic.  Hypoglycemia runs in my family.  Sometimes the hypoglycemia causes me a lot of problems and other times I can go months or even years where it does nothing…

Exercise….. Living with constant chronic pain, it is difficult to get any exercise.  This is why I force myself to clean up the kitchen, wipe all the tables down and use the light vacuum through the house every day.  That is the only exercise I get and it is painful, but I do it so my body moves everyday…

…The vacuum I had, a Dyson, was too heavy for me to use and I had NO way to buy another vacuum.  I wrote to three of the top vacuum places and explained my situation to them.  Hoover sent me a very lightweight vacuum that is steerable and super easy to use.  I recommend it for anyone suffering from a chronic pain condition.  Hoover Air Steerable, UH72400!  It has truly been a godsend for me!  It has a button to turn on or off the beater bar.  My house is just under 1400 square feet and the main areas are all hard floors with throw rugs, while the bedrooms are carpeted.  I have several animals, all of which I got before I knew I would be in this position of being alone and no money!  I am allergic to Pet Dander, so vacuuming daily is importent for my health. The Hoover Air Steerable picks up all the hair and even cat food and litter, while it transitions from hard floor to carpet all on its own!  I have always been a person that would NEVER ask for help, but now I am in the position, that the only way I will survive, is through help.  I don’t understand why the state of GA does nothing to help!  I literally have nothing left after paying the mortgage and utilities.  Yet, I can’t get help with the utilities!  How do I buy needed items?  Like toilet paper, DEODERANT, soap, shampoo and conditioner, etc.  I do everything I can to earn Amazon credits through Bing and Crowdtap, but that gets me around $10 a month and you have to have a $49 Oder for free shipping unless your Prime, which I can’t afford!  I wrote Amazon about that and they just gave me one $20credit…WTF!  Where is the help for people who are Disabled and Alone with no help from a spouse or anyone else?  I have tried everywhere and I do NOT have a vehicle!  My son’s girlfriend was getting me to appointments and now her vehicle has been broke down for months!  My insurance will give me 12 rides to appointments a year, which is no where near enough!  What about getting to the store and pharmacy?  I have rotten wood on my house, can’t pay to fix it!  The list is endless…

So there enlies the massive STRESS!  Which is also why I have been having Panic Attacks Daily!  Ugh…  In IL I was on Xanex, it works fast so when an attack started I could take one and in 15 minutes it would help me.  In GA, they refused to give me that and put me on Ativan, which takes an hour to work, so I have to take it three times a day to keep it in my system and I am still having attacks!  Yet, I constantly hear about the damn drug addicts getting Xanex.  I am ANGRY and just plain sick and tired of the crap………….

A Lost Soul….

I never thought I would be here going on 47 years old!  I work and built a great life, then my son died and my husband left and everything went to hell!  I lost a part of me when my son died and my husband chose drugs and cheating over the family we had…

Then, I thought I found true love again, but he was just a lie.  He pretended for almost 3 years to be the perfect guy.  How does someone do that for so long?  His real self came out and I spent years with a liar, thief and just a plain crappy person, because I married him.  He was too young and he left while I was fighting for my life.  I often wish I had died then!  

For 2 years now I have been alone, though I prefer being just me over being with a shitty man.  I feel lonely often, not lonely for a man in my life, but just a friend.  It seems everyone here is either an alcoholic or on drugs.  With my chronic pain, panic, anxiety and agoraphobia I have become a hermit in my home.  No vehicle or money, so I am stuck here anyway…

How did I get here?  I did everything right!  I chose shitty be in my life.  I know going to live with my parents is best for me, but at the same time I feel like I am loosing so much.  I will be able to eat right there and I will actually get to go out and do things.  I have to find a doctor willing to take me on and all my problems and not change my meds!  

I just don’t know why I am even here.  I spend every moment in pain and misery.  Why the heck didn’t I die two years ago?  There has to be a reason!  No one deserves to live on this much pain and misery and be alone…  

Ramblings of a Lost Soul…

I have had a very hard time this last week.  Sometimes, full moons affect me mentally and this one sure has, I feel like I am going to snap and loose it completely!   I also have my 6 year old grandson here for a visit.  He has been here for almost 4 weeks now and he has mental issues as well.  His anger has been high this last week and he just can not control himself or behave.  Which makes me even more unstable mentally!

My adult son, that lives with me, has done nothing to help me with my grandson.  I shouldn’t be surprised, but I really thought he would help me!  I have horrible pain and I just can’t do it all, but I have had too, so my pain has been very high.  I am tired of being mentally abused by my son as well.  Like When he gets in my face and says, “What are you going to do about, Nothing!”  Which is why I have chosen to go live with my parents in Florida, but I have to go through everything here and try to sell what I can.  

I can’t afford to eat right and $200 a month in Foodstamps doesn’t get you much at all.  I have nothing left after paying for this house!  I thought when I divorced my sons father I would no longer be mentally abused.  I refuse to suffer any longer, but it will take me months to get through things here.  I get sick in the heat and it is so hot and humid here, so I can’t do the shed or the yard sale until October!  I am hoping to find a pain doctor in Florida that will be willing to take me on.  It took five years to get the right meds for my pain, they are helping, though I will always have pain and very bad days.  I do not want any of it changed after all this time of finding something that actually helps!  

I am finally divorced from my last husband!  He was so wonderful in the beginning, it took three years before the real him came out completely.  He is 16 years younger than me and he acted like everything I ever wanted in a man, until we were together 3 years.  Then the real him came out, a liar and a thief.  He left me for 5-6 weeks, then came back.  The last year we were together was horrible!  I had a hysterectomy, they thought I may have cancer, which I did not.  He wasn’t there for me at all!  Then I was dying and it took 3 weeks for the doctor to figure out that he cut my ureter in the surgery.  6 weeks to the day of the first surgery, I had to have a massive surgery to save my life.  My husband was shitty as hell to me!  He left in September of 2014 after I found out he was cheating!  The divorce wasn’t final until this month!  It is over now, another chunk of my life wasted!  I dated for a bit, but every single guy just seemed to want sex.  So I started eating and gained 20 pounds and I have not dated at all since then.  I do not want to be with any man!  Unless a man comes along that will court me, it will never happen again!  I am 47 years old next month, I have been married 3 times!  I am DONE…  I do not want to deal with the drama and BS of a man in my life again…

I am overwhelmed and so stressed out.  In my darkest hour, the only ones that were here for me where my Mom (who is in FL) and my best friend, Lora, but she lives far away!  I couldn’t believe it, no one else was here for me at all!  I had always been there for everyone!  Not even one of my friends, that has been my friend since age 10!  Not my sister, who I always went to when ever she needed me!  I am and have been completely alone for at least 2 years now… 😰. I have found myself preferring to stay inside and away from everything.  I haven’t had a vehicle since last Novemebr either.  So, I am basically stuck here anyway!  I was supposed to get my grandson back this Friday, meet half way in Chattanooga, but my son said they will NOT do it and they have the only car here.  Real nice huh!  I have only stayed here broke and suffering so my son had a home… Fuck that!

For the life of me, I cannot figure out how I deserve this hell I live in!  I have always been a Good person!  I can’t handle my pain condition and my own mental crap even…  I have wanted to die more than ever in this year!  I could NEVER take my own life, but I have prayed several times for GOD to just take me back home already. No one should have to suffer like this… 😢 😰 😡 😤 😱 😥 😖

It’s Been Awhile… 

I have been having a very hard time this year!  My Chronic Pain has been very high and I do not have a support system or help.  I feel very alone, yet I do not want to deal with anyone either.  The depression sneaks in often, which is normal when pain levels are too high.  I try just to get through each day as they come, yet I have had some really bad times, where I am just Sick of being here…

It is impossible for anyone to even comprehend the hell of chronic pain, unless they too have it!  Trying to explain it is a waste of time and air.  I would never wish it on anyone and I often wonder what I did to deserve this hell!  I had always been there for others and helped everyone I could.  You sure do find out who really cares for you or loves you when you are down and out!  I have one friend, that I have had since age 10.  That is it!  She lives far away though.  Even family has forgot I even exist, except for my mother, who also lives far away…

I raised my grandson from birth to age 5, then he went to live with his father.  This was Important, to get him away from his mother (my daughter) who is a drug addict and gets violent.  My daughter lives on the streets or friends houses and all she cares about is getting high!  I missed him like crazy, but I have him for a short visit this summer.  I had not seen him in a year.  I love him more than anything!  Unfortunately, my son and his girlfriend, will not help me at all and with my chronic pain I have some very difficult times each day.  I get tears in my eyes every day from the pain and it is hard to explain to a 6 year old what is going on with me.  All I can do is my best each day, for him and for me to get through!  I really hate that my only living son won’t help me. But he will run and help the neighbors in a heartbeat.  He is an alcoholic, so he will do anything if he will get money or beer for it!  I try to survive on a very small fixed income each month, that leaves me with $50 after the mortgage…

 Lately, my son has been saying things like, “What are you going to do about it, Nothing!” When he gets in my face or I have to get onto him for breaking things in my home.  I don’t understand how my two living kids turned out this way!  My one son, who passed away at age 16, was the only good one!  He always talked to me and was there for me.  My kids were raised with morals and knowing what is right or wrong!  Yet my daughter is exactly like her father, who had not been in her life at all since she was 1 1/2 years old!  She is now 27!  My son is exactly like his father, but he was in his life until he was 14!  He is now 24!  His father was a great dad,until my oldest died and we had to move.  Then he got into drugs and cheated then left us all.  He has nothing to do with his son, ever since then!  I have only paid the mortgage so my son has a home and I have animals that I would have to find homes for if I left.  Now I am only staying because of the animals!  I have a cat that is anti social so I don’t think she would ever get adopted and I have a dog, that is very old.  I know I have to get out of here though, so I will have to spend months trying to sell things and find homes for my animals, before I can go live with my parents.  I cannot keep staying in such a negative environment, but I can’t tell my son I am leaving, because he will destroy everything here if I do…

I FEEL AFTER TIME, BEING AT MY PARENTS, I WILL FEEL MUCH BETTER …… It is just getting everything done so I can go there that is the issue…