I have been leaking around the catheter line since the day after I was in the ER and found out I had an infection, even though I was on antibiotics! It seems to be getting worse! I had already resorted to wear a generic form of depends underwear, which suck by the way, because underwear and a pad were not catching all of it and it was running down my leg! Last night I decided I would try wrapping the top of the line where it goes into me with gauze and then secured the exposed part with tape and I put on underwear with a pad. After two hours, my pad was soaked, the gauze was soaked and so was my underwear. I don’t know if it caused more of a leak or I have been leaking that much in the depends underwear, since they hold a lot more than a period pad. So much for thinking I might be able to wear underwear instead of the bulky ass diaper underwear! So frustrating!
Basically, there is nothing I can do about it and I have to have this in until the 10th of September. 30 days total! From what I can tell I will need to wear diapers for a few days while I try to learn how to pee again then. I so want to be done with all of this.
I have been paranoid about getting another infection, so three times a day I wipe it all down with alcohol to sterilize it! My last antibiotic is on Tuesday, I am returning home Tuesday and calling that morning to the doctors office to request they call I more antibiotics to get me until the catheter is removed! I have been on one form or another of antibiotics since July 17th. Yesterday morning and when I just got up there was a line of white urine in the tube. Like watered down milk. I have been passing a lot of white stuff too. I am forcing myself to drink as much water as possible. Did I mention how much I hate water!
Saturday was the first day I did not feel really sick. I actually felt like I had energy too. I even only took one nap. So, I figured the infection finally got beat down enough not to make me sick. Yet, the leaking has increased! I did not leak at all until after going to the ER and finding out I had an infection? Probably just coincidence. I had been thinking the leaking was caused by the infection and that maybe it would go away when the infection went away. I have read though, that when you have a catheter in for over two weeks, it is common for it to leak. The doctor said I would have it one to two weeks. I feel like he lied about every single thing to me. He insists I need it in this long and the benefits out weight the negatives. He doesn’t have to have it in him and hurting him 24/7. Many people say they don’t feel it, but mine hurts at all times, sometimes so bad I want to scream. It’s always a burning and irritated feeling, then it will jab stabbing pains up into me. I have had it in for 20 days and I have 10 more to go! I am having some test done on Friday that checks to make sure your bladder and all is working right and there is no reflux.
I only have two days left here at my parents and then a seven hour car ride back to my home. I so pray my family will be adults and get along and just be a family. I will miss the pure peace and quiet I get here. My parents waiting on me. They show concern for me and talk to me every day. My mom cooks and makes sure I eat right.
I slept about a hour and a half before I just woke and discovered everything wet. So, now I will be up for a bit. At least it is early enough that I should be able to get more sleep. One good thing about being back home is I have a fridge in my bedroom so I can get an ice cold drink when I get up at night. Here, I take a tea to bed and then drink that when I am up in the night and it’s usually pretty warm by then. I love lipton citrus green tea. My parents golf on the weekends. Yesterday they left here at 8:15am and were back at 11:45am. Today they leave at 9am and should be back around noon. Usually when I am here my parents take me out to eat a lot, but since I am attached to a big green bag that holds the big catheter bag, since I can’t wear the leg bag because it causes more leaking and won’t stay up on my skinny legs, I am not really wanting to go out anywhere. On the trip here I had to stop every two hours and get out of the car to move around and carry my bag. People would stare at me. The one bad habit I have is smoking, so I did go into a gas station to get some cigarettes with my bag and had urine run down my leg while I was paying. I have no dignity left.
I really pray I am able to urinate on my own when they take this thing out. I had one in for a couple of hours and I could pee but it burned like hell and took a lot of focus to get the urine out. I was determined though! It seems I get a night of decent sleep the a few where I am up a lot. Send some prayers this way for me, please………….